Listings in bold have entries in the topic that provide information about the organization or resource.
I. INFORMATION, RESOURCES, SUPPORT, AND REFERRALS_
American Parkinson Disease Association, Inc.
1250 Hylan Boulevard Suite 4B
Staten Island, NY 10305-4399 (718) 981-8001 or (800) 223-2732 http://www.adaparkinsons.org
Bachmann-Strauss Dystonia & Parkinson Foundation, Inc.
One Gustave L. Levy Place P.O. Box 1490 New York, NY 10029 (212) 241-5614
http://www.dystonia-parkinsons.org
National Parkinson Foundation, Inc.
Bob Hope Parkinson Research Center
1501 NW 9th Avenue
Bob Hope Road
Miami, FL 33136-1494
(800) 327-4545 or (305) 547-6666
http://www.parkinson.org
Parkinson Alliance
211 College Road East 3rd Floor
Princeton, NJ 08540
(800) 579-8440 or (609) 688-0870
http://www.parkinsonalliance.net
Parkinson Foundation of Canada
710-390 Bay Street Toronto, Ontario M5H 2Y2
Canada
(800) 565-3000 or (416) 366-0099 http://www.parkinson.ca
Parkinson’s Action Network (PAN)
300 N. Lee Street Suite 500
Alexandria, VA 22314
(800) 850-4726 or (703) 518-8877
http://www.parkinsonaction.org
Parkinson’s Support Group of America
11376 Cherry Hill Road, #204 Beltsville, MD 20705 (301) 937-1545
Parkinson’s Disease Foundation
William Black Medical Building
Columbia-Presbyterian Medical Center
710 West 168th Street
New York, NY 10032-9982
(800) 457-6676 or (212) 923-4700
http://www.pdf.org
Parkinson’s Disease Society
215 Vauxhall Bridge Road London SW1V 1EJ 020 7931 8080
http://www.parkinsons.org.uk
Parkinson’s Resource Organization
74-090 El Paseo Suite 102
Palm Desert, CA 92260-4135 (760) 773-5628 or (877) 775-4111 http://www.parkinsonresource.org
United Parkinson Foundation
833 West Washington Boulevard Chicago, IL 60607 (312) 733-1893
World Parkinson Disease Association
Via Zuretti, 35 20125 Milano, Italy (39) 02 66713111 http://www.wpda.org
Worldwide Education & Awareness for Movement Disorders (WE MOVE)
204 West 84th Street New York, NY 10024
(800) 437-MOV2 (6682) or (212) 875-8312 http://www.wemove.org
Young Onset Parkinson’s Association
P.O. Box 50936 Albuquerque, NM 87181 (505) 293-5612 http://www.yopa.org
II. PARKINSON’S DISEASE RESEARCH
The Michael J. Fox Foundation for Parkinson’s Research
Grand Central Station P.O. Box 4777 New York, NY 10163 http://www.michaeljfox.org
Muhammad Ali Parkinson Research Center
Barrow Neurological Institute 500 W. Thomas Road Suite 720
Phoenix, AZ 85013
(602) 406-4931 or (800) 273-8182
http://www.thebni.com
http://www.aliproject.org
National Human Genome Research Institute
National Institutes of Health Building 31, Room 4B09 31 Center Drive, MSC 2152 9000 Rockville Pike Bethesda, MD 20892-2152 (301) 402-0911 http://www.genome.gov
National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424 or (301) 496-5751
(301) 468-5981 (TTY)
http://www.ninds.nih.gov
National Institutes of Health
Building 1 1 Center Drive Bethesda, MD 20892 (301) 496-4000 http://www.nih.gov
Morris K. Udall Centers for Excellence in Parkinson’s Disease Research
Brigham and Women’s Hospital Center for
Neurological Diseases Harvard Medical School 75 Francis Street, Boston, MA 02115 (617) 732-5500
http://www.brighamandwomens.org
Duke University Medical Center
Udall PDRCE
P.O. Box 2903
Durham, NC 27710
(919) 681-5696
www.chg.mc.duke.edu/udall/
Johns Hopkins School of Medicine
Morris K. Udall Parkinson’s Disease Research Center
of Excellence (PDRC) 600 North Wolfe Street Baltimore, MD 21287 (410) 614-3359
http://www.hopkinsmedicine.org/parkinsons
Mailman Research Center at McLean Hospital,
Harvard Medical School McLean Hospital, MRC I 115 Mill Street Belmont, MA 02478 (617) 855-3283
http://www.neuroregeneration.org
Udall Center at the Mayo Clinic Birdsall Research 234 4500 San Pablo Road Jacksonville, FL 32224 (904) 953-2855 http:/www.mayo.edu/fpd
UCLA Udall Center
University of California Los Angeles
UCLA School of Medicine Brain Research Institute
Los Angeles, CA 90095
http://www.bri.ucla.edu
University of Kentucky Chandler Medical Center The Morris K. Udall Parkinson’s Disease Research Center of Excellence Rose Street Lexington, KY 40536 (859) 323-5000
http://www.mc.uky.edu/parkinsons
University of Virginia Neurosciences Service Center Parkinson’s Disease Treatment #800566 UVA Health System Charlottesville, VA 22908 (434) 924-5888
http://www.hsc.virginia.edu/neurology-care/ parkinsons.html
III. PHYSICIAN GROUPS FOR RESEARCH AND PARKINSON’S PATIENT CARE
Parkinson Study Group
PSG Central Office University of Rochester 1351 Mt. Hope Avenue Suite 220
Rochester, NY 14620 http://www.parkinson-study-group.org
The Parkinson’s Institute
1170 Morse Avenue Sunnyvale, CA 94089-1605 (800) 786-2958 or (408) 734-2800 http://www.parkinsonsinstitute.org
IV. WEBSITE-BASED INTERNET RESOURCES
Healthfinder
http://www.healthfinder.gov/
MEDLINE Plus Health Information
http://www.nlm.nih.gov/medlineplus/
National Institutes of Health Clinical Trials Database
http://www.clinicaltrials.gov/
P-I-E-N-O Parkinson, international email and website about Parkinson’s
http://www.parkinsons-information-exchange-network-online.com
Somerset Pharmaceuticals, Inc.
http://www.parkinsonsinfo.com
V. WORKPLACE ACCOMMODATIONS
Alliance for Technology Access
2175 E Francisco Boulevard Suite L
San Rafael, CA 94901 (415) 455-4575 (Voice) (415) 455-0491 (TTY) http://www.ataccess.org
Job Accommodation Network (JAN)
West Virginia University P.O. Box 6080
Morgantown, WV 26506-6080 (800) 526-7234 (Voice or TTY) http://www.jan.wvu.edu
U.S. Department of Justice
950 Pennsylvania Avenue NW Americans with Disabilities Act Civil Rights Division Disability Rights Section—NYAVE Washington, DC 20530 (800) 514-0301 (Voice) (800) 514-0383 (TTY) http://www.ada.gov
U.S. Department of Health and Human Services
DHHS Working Group for ADA/Olmstead c/o Center for Medicaid and State Operations CMS, Room S2-14-26, DEHPG 7500 Security Boulevard Baltimore, MD 21244-1850 http://www.cms.hhs.gov/olmstead/
U.S. Department of Labor
Office of Disability Employment Policy
200 Constitution Avenue NW, Room S-1303
Washington, DC 20210
(202) 693-7880 (Voice)
(202) 693-7881 (TTY)
http://www.dol.gov/odep/
U.S. Administration on Aging
Administration on Aging Washington, DC 20201 (202) 619-0724 http://www.aoa.gov
AoA Region I—CT, MA, ME, NH, RI, VT
John F. Kennedy Bldg. Rm. 2075 Boston, MA 02203 (617) 565-1158
AoA Regions II, III—NY, NJ, PR, VI, DC, DE, MD, PA, VA, WV
26 Federal Plaza Rm. 38-102 New York, NY 10278 (212) 264-2976
AoA Region IV—AL, FL, GA, KY, MS, NC, SC, TN
61 Forsyth St., SW, #5M69 Atlanta, GA 30303 (404) 562-7600
AoA Region V—IL, IN, MI, MN, OH, WI
233 N. Michigan Avenue Suite 790 Chicago, IL 60601-5519 (312) 353-3141
AoA Region VI—AR, LA, OK, NM, TX
1301 Young St. Rm. 736 Dallas, TX 75201 (214) 767-2971
AoA Region VII—IA, KS, MO, NE
601 East 12th St. Rm. 1731 Kansas City, MO 64106 (816) 426-3511
AoA Region VIII—CO, MT, ND, SD, UT, WY
1961 Stout St. Rm 1022 Federal Office Bldg. Denver, CO 80294-3538 (303) 844-2951
AoA Region IX—AS, AZ, CA, CNMI, GU, HI, NV
50 United Nations Plaza Rm. 455 San Francisco, CA 94102 (415) 437-8780
AoA Region X—AK, ID, OR, WA
Blanchard Plaza, MS-RX-33 2201 Sixth Avenue Rm. 1202 Seattle, WA 98121-1828 (206) 615-2298
