Visions and Re-visions: Life and the Accident of Birth - Is Human Nature Obsolete? - page 205

of Genetics,” in Jahrbuch für Recht und Ethik (Berlin: Dunchker and Humblot,
2001), 297-322.
14. Another novel well worth taking quite as seriously as Mawer's is Katherine
Dunn, Geek Love (New York: Warner Books, 1989). Dunn lays out precisely
these variations of anomaly, personality, and values among the children deliber-
ately conceived by their parents to be freaks.
15. Mawer, Mendel's Dwarf , 10.
16. Hans-Jörg Rheinberger, “Beyond Nature and Culture: A Note on Medicine
in the Age of Molecular Biology,” Science in Context 8, no. 1 (Spring 1995):
254.
17. Claude Lévi-Strauss, Les structures élémentaries de la parenté , 2nd ed. (The
Hague: Mouton, 1967), 10.
18. Jacques Derrida, “Structure, Sign, and Play in the Discourse of the Human
Science,” in Writing and Difference (Chicago: University of Chicago Press,
1980), 258.
19. Lévi-Strauss, Les structures élémentaries , 258.
20. Derrida, “Structure, Sign, and Play,” 283.
21. See Marian Yagel McBay, “Should Routine Childhood Immunizations Serve
as an Exemplar of Minimal Risk in U.S. Regulation of Research Involving
Children? A Closer Look at the Minimal Risk Threshold” (PhD diss., Vander-
bilt University, 2001).
22. Rheinberger, “Beyond Nature and Culture,” 260.
23. Mawer, Mendel's Dwarf , 52.
24. Claude Bernard, cited in Jay Katz, “The Consent Principle of the Nurem-
berg Code: Its Significance Then and Now,” in Annas and Grodin, The Naei
Doctors , 229.
25. Katz, “The Consent Principle,” 231.
26. Ibid. As Franz J. Ingelfinger, a former editor of the New England Journal
of Medicine , once insisted: “The subject's only real protection, the public as
well as the medical profession must recognize, depends on the conscience and
compassion of the investigator and his peers” (“Informed [But Uneducated]
Consent,” New England Journal of Medicine 287 [August 31, 1972]: 465-466).
27. This claim is expressly made by Gerald A. Weissmann, “The Need to Know:
Utilitarian and Esthetic Values of Biomedical Science,” in New Knowledge in the
Biomedical Sciences: Some Moral Implications of Its Acquisition, Possession, and
Use , ed. William B. Bondeson, H. Tristram Engelhardt Jr., Stuart F. Spicker, and
Joseph M. White Jr. (Dordrecht: D. Reidel Publishing, 1982), 106-110.
28. Charles Darwin, The Descent of Man and Selection in Relation to Sex , rev.
ed. (1874; repr., Chicago: Rand McNally, 1974), 130-131.
29. Kurt Bayertz, GenEthics: Technological Intervention in Human Reproduc-
tion as a Philosophical Problem (Cambridge: Cambridge University Press, 1994),
42-44.