Information Technology Reference
In-Depth Information
REFERENCES
In applying the spirit of these lessons, we advo-
cate a shift in roles for the developer/researcher of
care provision technologies. Rather than ignoring
or filtering out the noise in hopes of approximating
a controlled environment, we believe researchers
should embrace the chaos of the real world and
methodically record and analyze the care provision
process in order to extract relevant information
about the actual use of the technology as part of
the care provision process. Instead of writing
questionnaires and using well-worn replicable
scales for things like caregiver burden, researchers
should listen very carefully to the caregivers and
care recipients and use them as key informants.
In fact, researchers should go a step further and
actively involve the caregivers and care recipi-
ents in the research and development process as
colleagues. The caregivers, and when possible,
the care recipients should participate in shaping
research questions, tweaking technological tools,
developing data collection instruments and help-
ing in the interpretation of the results. There is a
name for such an approach when applied in our
disciplines of Anthropology and Sociology. It is
called “participatory research”.
In conclusion, we encourage developers/re-
searchers to leave the sanctity of the laboratory and
step into the noise and sunlight of the real world
and utilize non-traditional approaches such as
participatory research. Certainly our long journey
of taking the Everyday Living Monitoring System
from mere idea to GEQuietCare ® , developing the
Trigger-Action-Outcome methodology, producing
the HCIS informatics tool and implementing the
EBETA evaluative framework would not have
happened had we not first stepped out of the
laboratory and embraced the noise.
Alwan, M., Dalal, S., Mack, D., Kell, S., Turner,
B., Leachtenauer, J., & Felder, R. (2006). Impact of
monitoring technology in assisted living: outcome
pilot. IEEE Transactions on Information Technol-
ogy in Biomedicine , 10 (1), 192-198. doi:10.1109/
TITB.2005.855552
Alwan, M., Sifferlin, E., Turner, B., Kell, S.,
Brower, P., Mack, D., Dalal, S. & Felder, R.
(2007). Impact of passive health status monitor-
ing to care providers and payers in assisted living.
Telemedicine and eHealth 13 (3), 279-285.
Biswas, J., Mokhtari, M., Dona, J. & Yap, P.
(2010). Mild Dementia Care at Home - Integrating
Activity Monitoring, User Interface Plasticity and
Scenario Verification. Lecture Notes in Computer
Science, 6159/2010, 160-170.
Blackburn, S., Brownsell, S. & Hawley, M.
(2006). Assistive technology for independence
(AT4I). Final Report of the Assistive Technology
for Independence Study, Barnsley Hospital NHS
Foundation Trust (BH). Obtained by email from
Simon Brownsell simon.brownsell@nhs.net.
Celler, B., Lovell, N., & Brasilakis, J. (2003).
Using information technology to improve the
management of chronic diseases. The Medical
Journal of Australia , 179 , 242-246.
Cleland, J., Louis, A., Rigby, A., Janssens, U., &
Balk, A. (2005). Noninvasive home telemonitoring
for patients with heart failure at high risk of recur-
rent admission and death. Journal of the Ameri-
can College of Cardiology , 45 (10), 1654-1664.
doi:10.1016/j.jacc.2005.01.050
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