Biomedical Engineering Reference
In-Depth Information
Kristin Zeiler
ideas (see Dodds 2000); I also doubt that genetic counselling can ever be fully
non-directive.
20 As an example of such a criticism, after having reviewed empirical data of
interviews with kidney dialysis patients, fi rst-person illness memoirs, studies of
sociological ethnographies of bioethics as a practice within medicine as well
as empirical studies of autonomy, Carl E. Schneider (1998) argued that many
patients reject the burden of decision-making that is imposed on them. Instead,
patients want more 'personal concern' and fewer decisions (to be distinguished
from information) about treatment.
21 The exception is genetic diseases.
22 This makes the very notion of patient slightly misleading. Patients in everyday
vocabulary often have a disease or an impairment that makes them contact a
medical professional, though this is not always the case, as is clear in the whole
fi eld of delivery care. Furthermore, if pre-implantation genetic screening is
used, neither of the partners need have a disease nor be a carrier of a disease,
if infertility is not a consequence of a particular disease or is understood as a
disease.
23 There is an important difference between the woman and man in the reproductive
clinic, in terms of who will undergo most invasive treatment and be subject
to most risks. Still, in homologous IVF, i.e. IVF without donor, both partners
are physically involved in treatment, though the woman has the lion's share.
In heterologous IVF, IVF with donor, both partners are also involved (but in
another way) since both are needed to establish the need of a donor or donors.
24 Nikolas Rose (1999) discusses this view in a text in which he elaborates on
Bourdieu's concept of governmentality.
References
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Prescribing Our Future: Ethical Challenges in
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Braude, P., Pickering, S., Flinter, F. and Ogilvie, C.M. (2002) 'Preimplantation genetic
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Online. Available at: http://www.dhr.se/
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